looking through me

Tag: tumor

bruising season

The sunrise was gorgeous. The clouds, the shadows, the lights, the vibrancy of the colors. A sight that takes my breath away and sends me searching for words, so I don’t lose the scene.

Today? Not so much.

I looked at it. I acknowledged its beauty. And I kept going. There was no pause, no fear of forgetting . . . no awe. As though it wasn’t enough.

For days my mind’s been spinning and getting nowhere, but being outside tends to settle it. So as the morning waned, I took a walk.

The clouds were still impressive. A Monarch butterfly floated by on the song of unseen birds. The breeze was lovely. It was the perfect fall mix of cool air and warm sun. I looked for, but didn’t see, the great blue heron that’s been hanging out by the creek this week. I crunched through dry sycamore leaves.

I saw it all. I heard it. I felt it.

But I didn’t.

Instead, a sensation rippled across my shoulders and pounded on the inside of my rib cage as though my skin couldn’t contain me.

My focus is fragmented. My breathing is shallow. Tears threaten.

Why? What is different about today? What knocked my soul off center and took the rest of me with it?

Nothing. And everything.

I’m just not okay. All the things—Dad’s cancer, friends’ struggles, disturbing headlines—assault me. They use my mind as a trampoline and my heart as a punching bag.

It’s little surprise that some days the most stunning sunrise can’t loose the vise holding my lungs. And sometimes the perfect walk can’t perfect the day.

So in this bruising season, I press into the tender places and let the twinges remind me that okay—and not okay—comes in many shades.

The internal hues of today are a little darker than the external ones. I feel out of place in my own skin, in my own life. But admitting the disconnect helps balance the colors. The saturation point of my soul shifts.

My “not okay” is okay enough for today.

 


Note: I don’t post in real time, so this was written on Friday, November 3. That was two days before my dad’s symptoms returned with a vengeance. After four nights in the hospital and five nights (and counting) in a skilled nursing facility doing rehab, the colors of “okay” and “not okay” are more blurred than ever. Many questions and unknowns remain in this season. And still, God is good today and every day.  

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reading ahead

Surprises don’t rank very high on my list of favorite things. I’m a fan of a timely heads up and the opportunity to prepare for what’s coming—the good and the hard.

While I’m not a flip-to-the-last-page-of-the-story person, a part of me has always wished life had that option. Wouldn’t it be great to get a sneak peek at what’s to come? Nothing too drastic, maybe just the end of the chapter I’m in right now. Because I’m sure everything would make more sense if I had advance warning for some of life’s plot twists.

I’ve even prayed for it: God, can you please show me how this is going to turn out?

But not any more. I don’t want to know.

If I’d skipped ahead a mere four months ago, I wouldn’t have believed what I read—I wouldn’t have thought it possible to be in this reality. Catching an incomplete glimpse of today would have made me anxious and angry and incredibly confused. Words like gliosarcoma, massive infection, PICC line and platelets would have rocked my world. They would have raised more questions and fears than they’d answered.

If I’d been tipped off that Dad’s lineup of doctors would be big enough to field a basketball team with a bench of reserves, I wouldn’t have understood why he needed neurosurgeons, hematologists and an infectious disease specialist, not to mention the neuro-oncologist and radiation oncologists.

If I’d read the page where I had greater appreciation for doctors saying “I’ve never seen this before” or “I don’t know” than for their hypotheses and possible timelines, I wouldn’t have believed it. I’ve always preferred an abundance of information, so how in such a short span could I become comfortable with—and even grateful for—the admission of limited knowledge?

If I’d known I would come to see waiting as a gift because I’m not ready to hear it all at once, I would have scoffed. I thought knowing was better than not knowing, but I was wrong. There’s beauty in patience. There’s wisdom in waiting. There’s peace in being present in answerless suspense.

Most days I can’t figure out the whys and hows and whens . . . and they just keep coming. But reading ahead won’t solve the riddles.

Today is all I can handle. My soul can’t carry another day’s worries or reassurances. I’ll take tomorrow’s surprises when they arrive.

Turns out, there’s great mercy in the mystery of living locked in this moment.

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